You have been prescribed Lysodren® because your doctor has decided this is an appropriate treatment for your disease. Lysodren® exposes you to the risk of side effects. Each patient is unique. Not everyone experiences the same side effects. And some side effects go away during treatment as your body adjusts to the medicine.1
Your doctor may be able to tell you about ways to prevent or reduce some of these side effects. Tell your doctor about any side effects you may be experiencing.
Click or tap each “+” to view tips to help manage the possible side effects.2,3
Slow thinking or being confused  |
| Feeling dizzy or drowsy |
| Skin rash |
| Fatigue |
|
Loss of appetite, weight loss, nausea, vomiting, or diarrhea
|
TIPS:
TIP:
• Don’t drive or operate machinery if you have thisTIPS:
• Talk to your doctor if you are bothered by a rash or itchy skinTIPS:
• Rest when tiredTIPS:
• Drink plenty of water or fluids
Understand your medication routine.
Confirm the Lysodren® dose, how to take it, and timing with your prescribing physician and pharmacist. Verify the information each time you refill Lysodren®. Take the exact dose prescribed. Stick to the same schedule each day.
Write down your Lysodren® dose schedule and track changes.
Place your daily medication routine on a calendar or chart. Complete your schedule, record your blood test results, and track your dose changes over time. Print a Lysodren® medication tracker available here.
Keep your schedule in an obvious place.
Put the schedule in a place you see often, like the door of your refrigerator or next to the bathroom mirror.
Make taking your medication part of your daily routine.
It is best to take Lysodren® with food, so try to time taking it at mealtimes. You can try setting a timer on your phone, watch, or alarm clock.
Know who your healthcare team is.
Write down the contact information for the team of healthcare professionals involved in your care and treatment. Keep this list handy for you and your caregiver(s) to find when you need it.
During and after treatment, your doctor will do regular follow-up tests, which may include exams in the office, blood work, and imaging tests. You might need to take long-term medicines to correct the levels of hormones in your body. To monitor your hormone levels, your doctor will do regular follow-up tests of your blood, urine, and/or saliva.
Coping With Your Feelings
It is quite normal for you and your family to experience a wide range of emotions after cancer diagnosis. Important issues in the life of any person with cancer may include
Everyone will react to these issues in different ways. Both you and your caregiver(s) may have feelings of anxiety, depression, sadness, stress, difficulty sleeping, or eating. It is important to know when and where to seek help for these feelings. These symptoms and fears may lessen as as you adjust to the diagnosis.
Talk with your doctor about developing a survivorship care plan for you. This plan organizes information about your follow-up care, including6
Seeking Support
Life may be even more difficult when you are diagnosed with a rare cancer. It may be harder to speak to others who don’t know what you are going through. You may feel even more alone.
For this reason, you may want to talk to other people diagnosed with ACC, or their caregivers, to find more information and support. There are many support groups, patient advocacy organizations, and other resources available to patients and caregivers through the internet, such as the American Cancer Society.
Please refer to our list of Patient Advocacy and Support Organizations.
Lysodren provides links to web sites of other organizations in order to provide visitors with certain information. A link does not constitute an endorsement of content, viewpoint, policies, products or services of that web site. Once you link to another web site not maintained by Lysodren, you are subject to the terms and conditions of that web site, including but not limited to its privacy policy.
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